Usher Syndrome & the Profound in Simplicity
A little more than a week ago I posted a quote by one of my friends and Woman on the Move, Susan Rodgers. Today’s quote is by her twin sister Sherri as it relates to her Usher Syndrome.
Sherri and Susan were born with Usher Syndrome, an inherited disorder characterized by hearing impairment and progressive vision loss. Prior to meeting Sherri and Susan I never met anyone with Usher Syndrome however that didn’t prevent us from becoming quick friends.
Together and for several years in a row, the sisters would walk with me and my team to raise money for the Foundation Fighting Blindness. Together we would advocate on behalf of those with sight loss through our membership in the Pennsylvania Council of the Blind. Together the sisters gave me encouragement during my low points as I journeyed into sight loss. They are the reason I began using my white cane.
Sherri makes a simple yet profound statement on living with Usher Syndrome:
“I’ve been a member of the Western PA Association for the Deaf/Blind (WPADB) for at least 15 years, being a part of the group I knew a few people but had to talk to them through an Interpreter. If you’ve never had this experience it can be quite challenging.”
~Sherri Rodgers (Sherri and Susan are lifetime advocates who continue to work and live very fulfilling lives).
Image Description
- Thick fog engulfs a forest meadow as an impending morning storm prevents sunrise from brightening the sky.
- Sight Saving Avengers Pittsburgh VisionWalk team is a photo of 20 of our team members wearing bright orange tees with our team logo. Two of us are wearing the prior year tees which were black with orange ink.