Positive Change Begins With Action Through Advocacy

Image described in article


Editor’s Note:

I’ve blogged (another form of advocacy) for nearly 5 years and I’ve been an Abilities Crusader (advocate) for most of my life. While my advocacy journey has been lengthy, my purpose wasn’t fully clear to me until 2016 during a flubbed speech. Thankfully, my persistence to help people understand the value of people with disabilities enabled me to learn more about myself. Kindness, compassion, and a deep desire for social justice are central to who I am; these are my values. Bold Blind Beauty was born out of a personal need for empowerment that I wanted to share with others. ~Steph

“We rise by lifting others.”

~Robert Ingersoll

The Ripple Effect of Advocacy In Action

I love the work I do however there are times when it’s lonely and I feel like I’m not doing enough to create real change. Being an introvert, I’m comfortable working in a distraction-free atmosphere but one drawback is relying too heavily on my internal processes. Recently I learned a valuable lesson on how I sometimes get it wrong and can unintentionally hurt people. Being independent is great, but in advocacy, there’s no room for ego.

In preparation for two speaking gigs this month I requested some custom materials from a good friend of mine. Since the cost of producing the materials is rather high I offered to pay—a huge MISTAKE! When I received the quote I nearly passed out and had to eat some rather tasteless crow. Long story short, an email prompted me to make a phone call that resulted in me being told: “Don’t rob me of my blessing.” Then I was told how much my work means and how our collaboration is benefitting many people. I don’t mind sharing that as he spoke I broke down and cried. To have someone believe in me like this was so incredibly touching, humbling, and unbelievably motivating.

Advocacy isn’t a solitary venture and what I love about advocacy is its simplicity—identify something that needs to be done, then do it! Many people are highly skilled at identifying problems however when we don’t take the next step to become the solution, well, nothing happens. Take Blind Beauty, for example, I noticed there weren’t any fashion magazines that featured blind women so I created one.

I’m only one person but when I share my message of empowerment with another this starts the ripple. Like a chain reaction, when the message is relayed to others it becomes a small movement.

The Necessity of Awareness

While broken crayons may still color, as humans who are we to determine who’s broken? Frequently when we talk about people living with disabilities it’s from a point of view that there is something wrong. When in fact having a disability is only one of many traits that make us different not broken.

Through the years the number of awareness days/months has increased which makes sense as our population continues to grow. What’s so exciting to me about the explosion of awareness events is being able to witness the beauty of our differences.

During the month of October, there are numerous awareness days among them are:

As I mentioned earlier in the post, I have two speaking gigs this month:

  • Disability InSIGHTS – October 18, Erie, PA
  • SPARK Saturday (Self-confidence, Peer support, Accessibility, Resources, & Knowledge) – October 19, Harrisburg, PA (Pennsylvania Council of the Blind Annual Conference)

Now that I’ve finally figured out how to get from Erie to Harrisburg I’m so fired up! The themes, “showcasing the accomplishments of others with disabilities” and “Peers Challenging Beliefs” are straight up my alley. Promoting awareness by breaking down barriers while creating meaningful connections is what advocacy is all about.

Advocacy is 24/7/365 and it begins the moment we ‘leave our homes.’ To be clear, leaving our homes could be as simple as sharing our stories online.

People will probably always leap to the wrong conclusions about us and that’s okay. It’s not our job to convert people who aren’t open to understanding that all of us are temporarily abled. Our job is to live our lives to the best of our ability and continue to build awareness.

Building Community Through Our Shared Experiences

I feel like one of the luckiest people on the planet because I belong to a wonderful community of people. My life is so enriched mainly through the people I’ve connected to within the disability community.

I’ve befriended some of the most amazing people who are driven to make the world a better place by breaking down barriers. Ironically, one of these people, Kristin Smedley, a mom, speaker, author, and one of my heroes I’ll meet in person. As a matter of fact, Kristin will also be speaking at the SPARK Saturday event in Harrisburg. Oddly enough, I recently won a Kindle version of Kristin’s book Thriving Blind. So I asked her if she would provide a blurb for me to share here on Bold Blind Beauty:

Blindness. A tough topic to discuss? Not anymore. In this groundbreaking book, readers will see blindness in a whole new light. In fact, the compelling and entertaining stories will not only change perceptions of blindness, they’ll make readers forget the people featured are actually blind. Thriving Blind will transform your idea of what is possible for people who encounter a devastating disability or life challenge and will catapult your motivation to set extraordinary expectations for your own life.

I’m both excited and scared silly to share a speaking engagement with Kristin. What will help me get through it? Two things: My why and the knowledge that I’m not alone.

Bold Blind Beauty’s mission is to improve humanity by changing the way we perceive one another. When we place the focus on abilities versus disabilities – anything is possible!

Image Description:

A black and white close up photo of a drop of water making gentle ripples in a body of water.


  1. This sounds amazing Steph! I think if we all remember “the ripple” as you’ve described, then maybe our work will be more meaningful to ourselves and others. We can’t do everything alone, but together, we can do more.

  2. Hi Lynne, it’s so good to hear from you. How are you? The talks went phenomenally well and I couldn’t be happier with their outcomes and how they impacted the audiences. My heart was nearly bursting with joy. Hearing you say that you were influenced enough to begin a blog of your own makes my day! What is the name of your blog? I’d like to follow it. 🤗

  3. Hi Stephanae

    Not been online reading blogs as much and somehow missed this.

    Hope your talks went well. You’ve certainly influenced me a lot as I’ve just started a blog.


  4. Amen to that! We are so conditioned to desire to fit in and be accepted vs true belonging where we are free to be ourselves. Like you, I’ve found it easier accepting myself as I get older but I also realize it’s an ongoing process because the self-critic in me can be so loud it’s hard to grasp self-compassion. But even so, I’m so much more curious about this adventure than ever and will continue to open myself to being more wholehearted, if that makes sense.

  5. Self acceptance is only possible when you realise how many masks we wear I guess. When I think about it accepting myself gets easier the older I get.
    Finding balance is so crucial but even that gets easy with age. I’ll be interested to hear about your progress. In a post maybe?

  6. Hey Robyn, thank you for stopping past and for your lovely comment. I’ve been reading a lot about vulnerability, and as I may have mentioned in my previous comment to you, and learning to fully accept myself as I am is one of the bravest things I’ve ever done. I used to feel so much guilt and shame for being a deep thinker but as I continue on my self-awareness journey it’s becoming easier to embrace myself without blame or judgment. And you’re right, my work is so very satisfying even though I’m working to find more balance because when I’m not careful I do get burned out and it seems to take longer to refuel nowadays.

  7. Words of encouragement like yours propel me forward and I’m so grateful you are in my circle. Thanks George❤

  8. Thank you Kim! I can hardly wait to meet Kristin in person but fear I may need a sedative to calm my nerves🤣 I love our community an the many talents each of us bring to increase awareness.

  9. Oh Steph, what an inspiration you are – so totally vulnerable and authentic (I know, an overused word but I struggle to find a better one). I really like what you said about broken crayons and who has the right to define what a disability is. We are all flawed and that is what makes us interesting and human. Your advocacy work must be demanding but so deeply satisfying.

  10. You have done well! You will do well on your speaking gigs, too. You will not pretend to be someone you’re not, and for that very reason you will shine. Natural beauty and talent are always the best combination.

  11. I’m so happy that you will share the stage with a Kristin! And I’m so happy that you won a copy of her book our giveaway! Thanks for all you do to raise awareness, I’m so grateful to be navigating Blindness together ❤️

  12. Wendy!!! How are you? Thank you for your kind words, I really appreciate it. I’m visiting your place today. Love you!! ~Steph

  13. I love the last, inspirational sentence Steph: ‘When we place the focus on abilities versus disabilities – anything is possible.’ I’m adding it to my quote collection and naturally adding your name to it.
    You’re going places my friend and I’m applauding you. 👏🏻👏🏻👏🏻🥰

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